The HAYIM Association for Children with Cancer in Israel (Hebrew: ???????? ?) is a non-governmental organization that works voluntarily to provide assistance and support to pediatric oncology patients in Israel.
Video Hayim Association
Etymology
"Hayim" (also transcribed as Haim, Chayyim, Haym, Chaim Hebrew: ??????? ? Ã, ( listen ) ) is a Hebrew word meaning "live" is dedicated to improving and saving the lives of children with cancer.
Maps Hayim Association
History
This nonprofit charity was founded in 1984 by parents of children with cancer to advocate for their children's needs, and to support research. The Hayim Association is the first organization in Israel that aims to provide assistance to children with cancer. Since its foundation, the Hayim Association has worked incessantly to advance care and improve the quality of life of these children.
Association, the idea of ​​the late Prof. Rina Zaizov Marx, the recipient of the Israel Prize in Medicine, and one of the founders of the association, is run by parents of children with cancer, some of whom have been completely cured and some have died from the disease.
Function
All work is done on a voluntary basis, taking a lot of time and personal resources. The association originally worked on behalf of the Department of Oncology at the Schneider Children's Medical Center, but within a few years it branched, to this day operates nationally, supporting all childhood oncology hematology wards throughout Israel.
The Hayim Association plays an important role in raising public awareness about cancer in children, helping to reduce the stigma attached to the disease in various sectors of society. The various activities provided by the Hayim Association provide these sick children with happy moments and solace.
The main focus of the activities of the Hayim Association is centered on the promotion of pediatric cancer research and treatment in Israel. Much of the medical advancement in this field occurs because of the use of advanced equipment obtained with the help of associations. The association supports the creation of an appropriate database of the Israel Society of Pediatric Hematology Oncology, which monitors the incidence of pediatric cancer in Israel, and facilitates participation in international treatment protocols requiring significant financial support. The Association has positioned permanent social service personnel in pediatric oncology departments across the country, identifying on-site needs and providing immediate solutions on a daily basis.
The Hayim Association considers that an important part of its role is to treat the whole family through family-oriented activities. It provides support groups for parents and siblings of children with cancer, while providing material and emotional responses to their unique needs during diagnosis, as well as during and after care (including material support for needy families, special day activity financing, etc. Through its hard work, the association has facilitated the establishment of the first inpatient department in Israel for children with cancer, as well as the country's first bone marrow transplant unit for these children.
The Hayim Association is involved in the fight against cancer and in raising funds to help children. The organization is administered by a voluntary steering committee. All members of the association work on a voluntary basis, without pay. Assistance is given to all children regardless of race, creed, nationality, or political belief.
This association is a member of the International Confederation of Childhood Cancer Parent Organization (ICCCPO). As the sole representative of ICCCPO in Israel, it maintains close links with international organizations and benefits from experience and knowledge, applying information to promote the quality of life of sick children in Israel and to standardize care facilities in various centers in the country.
All the financial resources of the association come from contributions from within Israel and from Jewish communities around the world.
Current operation
Family Help
When a child is diagnosed with cancer, the family balance changes dramatically. As with the crisis caused by the diagnosis itself, one parent is often forced to leave their job to dedicate themselves to providing strict supervision and care for their child during the treatment. The second parents often keep on working, while remaining committed to taking care of the other brothers at home, ensuring that their daily routine is maintained as far as possible. This situation (reduced income vs. increased costs) causes the family to experience serious financial and emotional distress. Many families experience severe financial crises after diagnosing their child's illness, due to the huge costs incurred to care for their sick child. The Hayim Association provides financial assistance to families, so parents can continue their daily routine while providing for their daily needs as well as the special needs involved in paying for the care of their sick child. The following services are offered:
- Direct family financial aid
- Help in funding important ancillary equipment
- Assistance in purchasing medicine is not included in the Israeli National Medicines Basket, which is considered life-saving
- Special help for important medical needs, which will help improve the chances of children for recovery (purchase of special beds, wheelchairs, oxygen balloons, hearing aids, special glasses, etc.)
Holiday Food
On the eve of Easter and Jewish New Year, the Hayim Association provides holiday meals in the pediatric oncology department throughout Israel. Within the project framework, sick children who are forced to remain in hospitals during the holidays can invite their families to celebrate around the special feast table near the child's bed. This meal is organized and funded by the Hayim Association with support from volunteer associations. This includes hot festival meals with all the festival symbols. These foods provide warmth and love, and sweeten the holiday atmosphere for sick children and their families, and give them strength, though only a little. It also helps unite families, despite the tremendous crisis caused by diseases affecting every member of the family. In this project, the association also helps families of sick children who are experiencing financial difficulties. Families of children whose health allows them to be released from the hospital for a festival party are given a holiday grant - financial aid designed to help families organize festivals and purchase festival products and symbols needed for holidays, just like in every house in Israel.
Transportation Services
Pediatric patients must travel to and from the hospital to receive treatment. Many families experience financial distress due to childhood illness and the heavy costs involved in their care. Many families with sick children do not have private cars, and child health does not allow them to travel by public transport, because of their weakened immune systems. The frequency of their hospital visits is high, putting additional financial burden on the family. The Hayim Association has provided assistance in obtaining replacements and even fully finance transportation costs if the Family Health Maintenance Organization does not participate. Included are tests, follow-up visits, and various emergencies requiring the child to travel to the hospital.
Caregiver Services
When a child is diagnosed with cancer, family dynamics change dramatically. In addition to the extraordinary crisis caused by the diagnosis of illness, many parents are forced to leave their jobs to dedicate themselves to their sick child and accompany their child during the treatment. One parent often keeps on working, while still committed to taking care of the other brothers at home, trying to maintain their daily routine as much as possible. During the early stages of active care, families experience emotional turmoil, due to changes and upheaval in their lives. Then they have to deal with chemotherapy, radiation therapy, transplantation, surgery, and long hospitalization, and they need intensive care and close help. The Hayim Association provides sick children and their families with caregiver services. This service is designed to help families who need additional help and support at the hospital and at home for their children and relatives.
Summer Camp
The summer months are very difficult for these children, because they are in hospital undergoing treatment while their healthy friends enjoy summer camp and other fun activities. Sick children who are undergoing painful treatment are forced to avoid the fun of summer: traveling in public places, due to their weakened immune systems (as a result of care), swimming, visiting beaches, and participating in summer camps that offer various activities. To help offset them, the Hayim Association brings summer camps to the pediatric oncology department, where children can enjoy special activities that meet their particular needs and limitations, boost the spirit of children.
Dental Care
One of the most important problems in oncology treatment in children with cancer is oral hygiene. The link between cancer and tooth can be seen in two specific ways:
- The immune system of children receiving chemotherapy is very weak, which puts them at a higher risk of contracting the infection through dental care. The mouth is the main source of infection in children receiving chemotherapy. Therefore, dental and gum care is very important for children undergoing treatment, to reduce the risk of infection.
- Chemotherapy and radiation therapy alone damage the teeth, gums and lining of the mouth. If maximum attention is not paid to the problem, the damage may be long-term and further disturb the child's health. It may also increase the likelihood of complications in the health of the child, as a result of an infection that reduces the quality of life of a child who has recovered from cancer.
As a result, dental care is an important and vital component in the overall care of children. Pre-emptive dental care integrated with oncology treatments reduces treatment complications, while significantly contributing to reducing the suffering of these children and improving their future health.
The most common type of cancer in children is leukemia. When a child has to undergo bone marrow transplantation, pre-emptive care is required, to minimize the risk of infection that may be detrimental to the success of the transplant. Dental care incurs serious costs, forcing families to pay in cash as a result of the financial situation experienced by many families of children affected by cancer, but they can not make these heavy payments. In certain cases, without financial assistance, hospitals were forced to postpone transplantation because of inadequate childhood transplant preparation. Despite the importance of dental care in children with cancer, this issue does not receive a satisfactory response from the Israeli health system. Although the law requires HMOs to fund some of these children's dental care, in fact, there are several reasons preventing the provision of dental care for children with cancer:
- Dental treatment in children with cancer is difficult and complicated, because of their weakened immune system and impaired blood clotting ability. Dental care should be provided by specialists in dentistry, and the number of these experts in the community is very low.
- Due to bureaucratic failure, most children with cancer do not receive full insurance coverage for this treatment.
- Due to the high cost of dental care, many families have difficulty in paying even for some of these expenses.
Holiday
For our sadness, not every child healed and beat cancer. The Hayim Association is funding holidays for families of severely ill children. Caring for a child with terminal illness is a big responsibility, not only physically and mentally but also financially. Many of these families live with low income or social welfare benefits, because they are forced to stop working to care for their sick or disabled child, and rarely, if ever, get a chance to enjoy a family vacation together. The purpose of such a holiday is to unite the family and give all members their last happy moments together. This makes the children's ultimate experience of happiness and pleasure, before they join the angels. Their emotions and pain can not be expressed in words.
Allocation to Institution
The Hayim Association supports the oncology department at hospitals throughout Israel, to promote the quality of medical care and care provided to sick children in this department. The association funds the position of medical staffing staff: doctors, nurses, social workers, psychologists, laboratory technicians and paramedical staff, based on the needs of individual departments and the financial capacity of the association. The Hayim Association also supports the Israel Society of Pediatric Hematology and Oncology vis-ÃÆ' -vis medical protocols in Israel and abroad in funding financing from data managers (to join the American Children's Oncology Group (COG), in ISPHO financing [1] conference , and a professional psycho-social forum designed to compare and evaluate the treatment of children throughout Israel.
Representative
The association operates in all national medical centers, and is part of the department's oncology network. This is distinguished by its activities in identifying actual needs at the individual and collective levels, and for suitable projects that respond satisfactorily to the needs of children and their supportive environments.
- Soroka Medical Center in Beersheba
- Ramboo Health Care Campus in Haifa
- Bnai Zion Medical Center in Haifa
- HaEmek Health Center at Afula
- Hadassah Medical Center in Jerusalem
- Shaare Zedek Medical Center in Jerusalem
- Sheba Health Center at Tel HaShomer
- Dana-Dwek Children's Hospital in Tel Aviv
- Schneider Children Medical Center in Petah Tikva
Awards and achievements
In recognition of its activities, the Hayim Association was awarded the 2002 Alon Prize for its "Extraordinary Role" and for its contribution to society in Israel. The Association has been awarded the Quality Stamps of Associations and Non-Profit Organizations sectors and certificates of Appropriate Management of the Registrar of Amutot (Non-Profit) Society. The Hayim Association is recognized for tax purposes, the Israeli Registered Nonprofit Community No. 580073955. The Hayim Association is a tax-free nonprofit organization.
Note
External links
- The Confederation of the International Children's Cancer Parenting Organization (ICCCPO)
- GuideStar Israel
- Israeli Society of Child Hematology and Oncology (ISPHO)
Source of the article : Wikipedia
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